Update from a very long day

Very long day. Bella is now stable and resting. Daddy's home tonight because of work tomorrow. Mommy's spending the night. We'll update the blog...Mommy might tonight. From promising news this morning regarding out next step regarding the mei results to an uncontrollable nose bleed, an ambulence to St Joe's ER where Bella experienced the most discomfort yet. By the time I arrived from rushing out of work to Bella screaming and bawling, begging to go home while then ignored her port access, shoved a peripheral iv in her arm and packed material and a balloon in her nose to stop the bleeding. We could do nothing but pray and promise her it would be done soon and continue watching her be tortured. Our poor little angel. Today's saving grace was the amazing Joy Mob on Tale of Bellathanks to Team NEGU and the Rees family. Bless you guys and bless everyone for your prayers and well wishes. It was the glue and courage that fueled us to make it through the day.