The Lord is my strength and my shield; my heart trust in him, and I will give thanks to him in song. Psalm 28:7

Friday, September 30, 2011

End of Day 4 Update

Wow, day 4...still digesting much of yesterday's information on top of absorbing the reality of what will transpire over the next 14 months.  Not too much activity today so not too much new to report except...

...we go home tomorrow afternoon!!!!  Yippee!!!

This, of course, is followed by our first treatment sessions starting on Monday and will occur daily through Friday.  We picked up enough prescriptions today for a small animal farm - and these were just the "as needed" drugs (excepting the antibiotic that is taken only once a month).  There's such a laundry list of side-effects we're really unsure of what the week will be like.  But, I'm certain that Bella will be so happy to spend more time at home and be able to walk around a bit, go outside etc....isolation is starting to wear on her.

Bella had another MRI of the brain tonight (they goofed and should have done this one when they did the spine MRI...it's how the Dr. ordered it but didn't seem to make it onto the order in the computer...yikes!).  This MRI was to use for planning on the radio therapy treatment.  We also discovered that the odds of 70% that I shared yesterday is definitely a good odds....since we didn't really have a measure to compare it with, I asked one of the Dr.s on the oncology team who shed the light that, especially with this tumor, it doesn't get much better than that and can be viewed and survival is most likely.

Medically, that was the excitement of today.  The rest was our amazing God working through so many different people doing things for Bella to make her happy.  Our nurses have been amazing and today's crew was extra special...we'll never forget Marjorie and Mary and Jackie!  And the Radio Lollipop crew spent some quality time with Bella tonight and we all we laughing hysterically!  That felt great!  Certainly not least, God's love for Bella working through friends sharing such selfless love....it's certain to be an emotional weekend as this love sinks in - right now, it all seems so surreal.  Blessings, I'm starting to think, truly are miracles and gifts from God.

That's really all I'll share from today.  Definitely starting to feel goofy fatigue and recognizing that while we have not been neglecting our nutrition, we have been neglecting sleep a little.  We'll be working on that!

Thanks again everyone for blessing us with your friendship and love.  Thanks for praying for Bella and for sharing her story.  I sense that God's plan is strong at work with this and that wonderful miracles and epiphanies will come from all this.

with thanks and blessings for you too,
Sam

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